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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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I am still waiting to be contacted by the health agency about the bipap. I hope you don't think me a pest, but I am concerned about my lungs crackling. My last chest xray showed linear scarring on the lower left lung. I had a chest xray 2 years prior for surgery that was normal. I looked up the scarring of the lungs and found fibrosis or atelectasis, which they said is when the air sacs don't fill. One of the causes they said was neuromuscular and they gave the example of myasthenia gravis. Has anybody ever heard of this or experienced this?
Also, I went to the rheumy yesterday. He wants to switch me from effexor to cimbalta to help with the pain. Has anyone ever taken this with MG. He said my rash was livedo reticularis which is associated with autoimmune diseases. Please let me know if you ever experienced this, particularly the lung scarring and crackling. I start my third and last dose of maintainence IVIG today. So far no bad side-effects.
thanks
kathie
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