Originally Posted by Nanc

Hey Di! It is sometimes so hard to tell if it is spread or something else. If you do suspect that it is spread, then push the issue with your dr. I have had this for 23 years. It started in my face but I did not experience spread until 2007 (venipuncture). Then I hurt my right hand and it spread there and mirrored over to my left hand. Then my left shoulder joined in...then the right...then down my left leg. Anyway, the PM dr I went to at the time was doing right side SGB's. I told him several times about the left side issues. He said he didn't think it was RSD, sent me to an ortho for my shoulder and sent me for an mri on my back (thought that was causing the leg pain...it wasn't). I ended up having a bone spur removed from my shoulder and while I was in recovery, the ortho told my husband that he thought the spur wasn't causing the pain it was the RSD. Great, thanks for making things worse doc! I knew it was RSD spreading and I was right, it was. I did not return to that PM dr, I found a new one and he confirmed it. I have had spread happen very quickly in some spots, like in my hands, and gradually in others.

Maybe the vit C you are taking is helping, I don't know. I cannot take it so I am not sure how it works.

Wishing you the best,
Nanc