Quote:
Originally Posted by Russell
So sorry to hear of your battles.
Skin changes are just one of the symptoms. The actual cause this monster is the disruption of the Sympathic Nerves signals to the brain. This can manifest itself in various ways.
As far as I know from the info I receive from my neurologist the most accurate test is the EMG of the area to see the reaction of our brain to certain signals.
I get seizures too and I take Cymbalta for them which helps somewhat.
I'm not trying to sound like a know it all. I'm just chiming in...
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I have had RSD for 12 yrs. I couldn't even have a shower without screaming from the pain in my ankle & leg. I had the discoloring, the crockadile skin, swelling, joint stiffness & couldn't touch my foot to the ground till I got my sympathetic nervous system rerouted. They said I would have permanent issues but it was manageable & it comes & goes. I didn't know it could cause any internal organ issues or seizures. I started having chronic migraines 6 yrs ago & 4 yrs ago got daily seizures that lasted about 20 min. I have seen boatloads of neurologists & i have assked could it be RSD even though I never heard of that as a side effect I asked anyhow & all said no. I now have seizures about once a wk & i get involuntary muscle spasms. These come even if I don't feel the pain. Does that happen to you or only when you are in pain. I couldn't use cymbalta or any of the types of meds as they caused me to have 10 or more seizures a day along with a boatload of other issues, once stopped went back to my normal seizure pattern. Great to hear others with RSd have seizures so I know I am not crazy like they try to tell me.