Your responses have made me feel better. I am going to take your advise and check out the links you posted Jo*mar and do a little self research. moosey2me, no bothers that happens to me a lot. I get home and realize I haven't asked questions that I actually wrote down. It's overwhelming talking to our docs bc we have so much going on.
I am thinking I really need to see rsd doc. I looked up in my area and there is one doc but he refused to see me bc he did not believe I had rsd bc it's so rare. And he's supposed to be a rsd specialist. Makes me wonder. My cousin recently was diagnosed and I have talking to her about the docs she sees, but they are two states away and do not take my insurance. So research here I come.
Thank you so much for your replies. I am humbly honored to talk to others in the same boat. Your support means a lot.
Take care my CRiSPy friends.