Quote:
Originally Posted by joecarver
Marie I amtaking same amount of the supplements as you tried, 100mg r-lipolic and 150mg of benfotmine. My pained has decreased , but not gone , at a level that I can manage. I was on Lyrica, the last med I tried, had bad side effects and a hard time during withdrawel. Dr. had said some people it helps and some just cannot tolerate it, I was among latter group sadly.
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Hi Joe
Thank you for responding. Do you have Idiopathic SfN? Its amazing that you are getting relief with only the R lipoic Acid and Benfotamine. Do you take any other type meds for your pain? I have SFN , over two years it has progressed to my arms, hands, mouth and torso. They called it length-dependent (started in my calves & feet) but I have it widespread now. I take 325 mgs Lyrica, I tolerate it ok but I still have so much pain. I get mostly tingling, buzzing, tightening, lancing pain in my arms, legs and feet. Some-days my skin burns all over including my face and lips. This is a horrible , miserable disease to have. The lyrica does not help as much as it should. How much were you taking and and how long did it take you too withdraw? Withdrawal scares me so much. What kindof Neuropathy do you have and what else do you take for your pain? Do you have the same symptoms I have. Sorry for all the questions. Thanks
Marie