Quote:
Originally Posted by Billylyne5
I have been struggling with nerve pain which started last September in my right arm which has slowly spread to both arms, hands, feet,legs and face, with random burning patches elsewhere, also balance problems, after much testing mri etc etc my neuro said as everything else is normal it must be small fibre neuropathy. He gave me no other information even when I quizzed him. Just that he'd see me in three months and have a px for tregatol to add to the gabapentin and I will see you in three months.
I do have gritty eyes, sexual dysfunction/ dryness as. Well
I have kept a diary over the last few months and have noticed a definite increase in pain/symptoms for about a week before my period, anyone else noticed this?
My neuro did not seem interested in finding an underlying cause how important is it to peruse both a fully confirmed diagonosis and the cause?
I am feeling pretty crappy about it all and abandoned by the neuro with no info
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Hi,
Welcome to neuro talk! I have found that once doctors do a certain amount of testing and if they can't determine a cause for neuropathy they stop looking. They prefer to treat the symptoms. Actually, from what I have been told it doesn't matter what the cause, the treatments are mostly the same. The exception is for hereditary neuropathy.
There are wonderful people on this site with a wealth of knowledge regarding neuropathy. There are many supplements that can be used to help manage the symptoms of neuropathy. Mrs. D is wonderful with that and any others questions regarding the meds you are taking.
Get a list together of the bloodwork you had done so the people here can see if your doctor missed something. As for feeling abandon by your doctor, I think next time you go it would be a good idea to gather a list of questions and possible test you may want done and/or meds you want to try. Sometimes first visits do leave people feeling lost.
If you continue to feeling abandoned after your next appt personally I would find another neurologist.
