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Old 03-02-2014, 10:27 PM
Ginger123 Ginger123 is offline
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Join Date: Jan 2011
Location: RI
Posts: 1
10 yr Member
Ginger123 Ginger123 is offline
Newly Joined
 
Join Date: Jan 2011
Location: RI
Posts: 1
10 yr Member
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Quote:
Originally Posted by Anki View Post
Hi everyone, I have been recently diagnosed with a 8 mm colloid cyst. The neurosurgeon suggests an open craniotomy to have it removed. This doesn't sound good ...If anyone could share the post surgery experience, it would be very helpful! Thank you so much! PS I am from Toronto.
Hello Anki, I'm so sorry to hear that you received this diagnosis because I can imagine the pain and other symptoms that you may have had that brought you to seek medical assistance. I had a large colloid cyst removed over fourteen years ago after fifteen years of misdiagnosis and neglect. Because of the size of mine and the amount of hydrocephalus that I had, my surgeon chose to do an open craniotomy, too, as that is the route that he was most skilled at doing. He got the whole cyst out, but the hydrocephalus could not be relieved for me because the cyst had been there too long and I needed to have shunts put in my head. Unfortunately, I did not have a very good post surgery experience as I suffered a stroke during surgery because, I'm told, the general surgeon assisting my neurosurgeon retracted to roughly and caused a hemorrhagic stroke. That being said, make sure you know your surgical team. Everyone doing your surgery should be certified to do neurosurgery. In other words, the surgeon assisting your neurosurgeon should be another neurosurgeon. My mother had her surgery for the same thing at a different hospital and with a different surgeon and had a much better outcome.

Take good care and I hope all turns out well for you.
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