Hi everyone, I had my NEVRO senza trial in August 2013, and it was brilliant. I've two leads, one covers c2 thru to t3, the other is in my lumbar. Post trial was initially terrible, however, after multiple reprogrammings, we hit gold...for a while. I managed to come off oramorph, and was reducing my cocodamol, then suddenly everything started to hurt. Every day, I would have pain free times, and then like turning a switch, my arm, spine and legs would start hurting. I can only equate it to an epidural wearing off during full blown labour. It really started to mess with my head, it would make me scream out loud and then I'd cry. I've never been the 'pain person', I was confident and self assured, merrily going for surgery after surgery (8 in total in the past 14 years).
Now, the pain is almost constant, and the device is causing pain. Everyone I know who has had the implant (I went on the INPUT course at Guys and St. Thomas' in London), and at this present time, we are all in such pain. Could it he the weather? It has been cold and wet for months now, and that is the only common denominator .
Sorry if this doesn't make much sense, but I just need to find out whether anyone else has experienced this? We had a 9 month reunion, and all of us are more depressed than we were pre implant. I had my implant privately, but 3 months after the implant all insurance relating to my spine has been removed. Now I'm at the mercy of the NHS and I've got to wait until 9th April before I can be reprogrammed.