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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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On or Off
Despite playing footsie with this damn disorder/disease for fifteen years, I am not certain that I know what On and Off are, other than the misery of drugs not working and the brief joy when they do. And it is one big pain i n the ***.
I have found that one thing that helps is a simple tool formed from cutting a piece of plywood down to approx half-size (depends on the users body size). Walking this little fella" around the house is great and quickly mastered without the claustrophobia that comes with it.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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