Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Hey Susanne C :)
My skin biopsy was only taken at the ankle and showed zero A and C fibers in my feet. I have not yet experienced any numbness except for my feet but have noticed the following: deep aching in both legs, same aching in upper right arm, teeth hurting and jaw. And new symptoms on the tops of my feet. I know the teeth and jaw thing are the SFN because this is what I experienced during chemo but not to the degree I have now. The only partial, able to deal with pain relief is 1/2 a vicodin 7.5 every 3 hours and 1/2 a Xanax when really bad which is quite often now. I, like you, have no idea what to expect in the future and it really scares me.
I am so sorry your daughter is having problems. That can be the most stressful thing to deal with. I admire your ability to be able to help your daughter and toddler with your condition. Bless you...your plate is overflowing. I am very thankful that my youngest grandchild (I have 6) was 7 when this started last year. They have been very helpful and I'm able to let them come whenever they want to because they are basically self sufficient I'm not sure I could handle a toddler but probably could if absolutely needed.
You are one of the few people I've met with no fibers in the feet.
Wish I could be more helpful but I'm sure others will follow that can advise. That will help me too....thanks for the thread ![Smile](images/smilies/smile.gif)
Take care and I'll be thinking of you and your family and praying for everything to work out.
Debi from Georgia
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