I think I will raise that issue at my next visit. A long time has gone by since my last blood work and things might have changed. He is usually good about ordering blood tests- I have wanted a new MRI because of the sciatica issues but the insurance will not accept that unless my diagnosis changes... And we have a "Cadillac" policy.
I was wondering that myself- it seems that if this progresses enough you can develop autoimmune issues. I hate the idea of being hit with the "Fibro" label or adding anything else to my simple and dire CMT, degenerative spine, and arthritis.
The neurologist at Hopkins thought I was on IVIG and said to discontinue it. I took that as evidence that it wouldn't help. (And that he hadn't read my chart). But as you said, things change and maybe it is time to look for something else.
I appreciate your concern.