Thread: Curious
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Old 03-06-2014, 06:39 PM
finz finz is offline
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Join Date: Feb 2007
Posts: 1,804
15 yr Member
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
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Quote:
Originally Posted by LBMDDW View Post
Thanks for the responses.

I was diagnosed about a year ago, I have CRPS in my right shoulder I have been working throughout which has been hard trying to put on a brave face but I am at the end of my tether at the moment.

Think I need to take to my doctors again.


I give you a lot of credit for being able to force yourself to get up and out to go to work while dealing with severe pain. Plastering on that brave face for long enough to work is a tough job in and of itself.

There are many on this forum who are really struggling with inadequate pain management and still trying to work. There are some who are somehow balancing work, home life, and reasonable treatment for RSD. There are also many of us who are no longer able to work because of the disability caused by chronic severe pain. You have friends here all long the spectrum who you can talk to or vent to. Our condition can lead us to feel isolated even a room full of people. It has helped me so much to know that I can always find support from someone who "gets it" here.

Please do talk to your docs. You need to get their help to maximize your chances of being able to work as long as possible. Do you have, or does your country offer, some kind of long term disability assistance if that becomes necessary ? In the US, we have SSDI if we have the qualifying work history, but it can take years to get approval. Try to use the time while you can still (somehow) work to get your ducks in a row for how you will be able to manage financially if you become unable to work.

I'll add that I think even with decent pain management, I think it takes a lot of drive to push yourself to keep working/go back to work, but the payoff for that extra pain can be huge. The socialization that happens in many jobs and the self respect/pride in a job well done are mental positives for anyone, but especially important for us. I wasn't prepared for the feeling of being devalued when I could no longer work.
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Gee, this looks like a great place to sit and have a picnic with my yummy bone !
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