NeuroTalk Support Groups - View Single Post - Anybody Used/Using Emory Neuro Dept In ATL For PN ?

uglogirl · 03-07-2014, 01:53 PM

Quote:

Originally Posted by St George 2013

I'm really torn about whether to keep this appointment or not. My husband wants me to keep going to my local neuro and wait until he's tried all he can do before I go to Emory.

Most people are telling me to go and see what they say. The trip will be hard even through ATL is only an hour away....then we'll have to deal with the wheelchair in the hospital.....no way I can walk that far. I hate stressing about this !

Many of you already know my story.....small fiber neuropathy....zero A and C fibers in my feet due to diabetes and 6 rounds of chemo. This effects my feet, legs and upper right arm...sometimes my jaw and teeth. Current meds for this are 1800 mg of gaba a day and 90 mg of Cymbalta at night. I'm still not where I want to be in reference to the pain. I've only been using this neuro a few months. And my journey is pretty new.....going on 10 months now.

I would appreciate any comments or suggestions even if you have not been to Emory

uglogirl

Debi from Georgia

I don't know anything about the Emory but if it were me and I made the apt I would keep it.

An hour drive reading a book or taking something you can do that you enjoy the will fly by before you know it.

The wheel chair folds up just put it in the car no biiggy who knows they may have valet parking and can help you or they may even have their own wheel chairs you can use. I would call and ask what accommodation they have.

You can still continue with your other doctor why not? All your doing is going for a consultation and peace of mind.

You mention chemo treatments is whatever you had them for under control.

I have an apt with a Neurologist next month and my primary DR put me on the garbapentin.

This is new to me too with it at this extent of numbness, burning, and the whole nine yards.

I should have thought something about it years ago when I think it was starting slowly.

Like you I am a Diabetic I thought my sugars were fine but the more I read I know they weren't. my A1cs ranged throughout the years as 6 7 even an 8 last year.

Like now my feet on top burn a little I keep busy or get a blue bag from the grocery put ice In it and put my feet in that. It really helps most of the time unless it's really bad then nothing is going to help.

I wish you luck at the Emory I hope they can help you.

I hope my opinion helps a little and gives you peace of mind,