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Old 03-07-2014, 03:02 PM
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Nervous1 Nervous1 is offline
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Join Date: Jul 2012
Posts: 117
10 yr Member
Nervous1 Nervous1 is offline
Member
Nervous1's Avatar
 
Join Date: Jul 2012
Posts: 117
10 yr Member
Question

Hello 029anser,

I wanted to check in with you and see how you are doing after the IVIg infusions.
Are you still in remission?
What symptoms of neuropathy did you have prior to the infusions?
How long did it take for the neuropathy symptoms to respond?

Thanks,
N1


Quote:
Originally Posted by 029anser View Post
nervous

IVIG is the most natural treatment there is...there is nothing to be scared of

potential benefits far outweigh the risks

if your Dr is willing to fight your ins co for your right to try it for your autoimmune sfn, bless him

I was dxd with cidp madsam....had 22 IVIG infusions over 14 months....am now no longer "active" with cidp per emg...have been off IVIG now for for almost 5 months...so far no relapse...am still knocking on wood

only problem is that I believe IVIG still does NOT have FDA indication for sfn....so that gives excuse for your ins co to play the deny card

still I believe IVIG can only benefit you....hope your physician keeps fighting your ins co for your right to try it
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