Grand Magnate
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Join Date: Aug 2006
Posts: 4,440
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Grand Magnate
Join Date: Aug 2006
Posts: 4,440
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It does not work for CMT because CMT is an "inherited" syndrome. However, it seems to have worked for two of the siblings in one family who had CMT1X. But, that's one family and they had CMT1X. Susanne has CMT2 but do not know the subtype.
It seems to work for autoimmune conditions but of course there are side effects as with everything for some people. Affecting the liver is just one possible side effect that a person might encounter. The majority of people who have IVIG treatment can tolerate it. Again, it is for autoimmune diseases of which CMT is not. I believe Susanne also has arthritis so it could possibly help that. JMO.
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Kitt
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"It is what it is."
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