Junior Member
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Join Date: Dec 2010
Posts: 34
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Junior Member
Join Date: Dec 2010
Posts: 34
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About a year ago I started getting similar headaches. I felt it EVERYWHERE on my head, including my forehead, where I feel headaches and all over my scalp at my valve sight, which is also a symptom I get during a malfunction. I also had extreme jaw and tooth pain. I called my neurosurgeon because my shunt malfunction symptoms WERE present but I told them that this didn't feel like a shunt headache; although the sensation was the same, it felt like it was originating OUTSIDE of my brain, not inside. In addition, I couldn't explain the other symptoms with a shunt malfunction, particularly the jaw and tooth pain. My neurosurgeon's office told me to trust myself and explore other options. I eventually discovered that I was clenching my teeth/jaw together all night. When I went in to see a head/neck pain specialist, they saw that my teeth had been ground significantly, and that the muscles/tendons the back of your teeth, the muscles that press the upper and lower teeth together, lit up with pain when the dentist pressed on them. She explained that the reason my scalp/shunt hurt was because the clenching ignites the muscles that start at the base of your skull (which is what make me think that you are experiencing something similar) and wrap around your scalp. And because my incision site is so sensitive (it has been opened 6 times in the last 2 years) it is especially painful in that area. She fitted me with a thick mouth guard at night, and in addition I use heat to relax my jaw, scalp, forehead, neck and upperback. Also, she referred me to a physical therapist who taught me some basic principles and exercises to help relax and heal my jaw muscles. It has been a life saver! I would suggest being evaluated my specialist for TMJ (temporo-mandibular joint) problems if it hasn't been ruled out already, it explained all my symptoms that a shunt malfunction didn't account for. Good luck and keep us posted!
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