I do just IVIG with IV's each time... I do also have small fiber neuropathy, so them poking my veins doesn't bother me much.. I don't let them touch my big AC veins (the ones in the fold of your elbow) because I want those to stay healthy in case of an emergency.. So they tear up my hands and wrists mostly.. I got IVIG every 2 weeks for a year, and now every 3 weeks.. They have talked about immunosuppresants, but at this point that worries me, so until I have to, I am trying to avoid them.. (I have two small kids who bring home germs, and work around a lot of people).....
They have talked about a port.. but again the risks of infection worry me (a very rare complication, but it is one).. After I had an IUD perforate me when they put it in (and crashing with my illness from that).. I am much more hesitant for any procedures.. unless necessary