Quote:
Originally Posted by keweenaw
What I really need to hear from folks is -- do most of you lead a "normal " life with this?? I mean, as much as possible, are you able to go on vacations, and work, or have a life?
|
Hi keweenaw, welcome.
Many of the folks here are:
- New to PN and scared spitless; many come & go; some stay
- Have multiple health issues—some worse than PN—some with more difficult types of PN (there are over 100)
- In dire straights—on the "severe" side of the bell curve
So I don't know if it's accurate or fair to say that folks
here lead a normal life with this, HOWEVER, I think for
many—even some here—their PN is more of an inconvenience/nuisance. At the risk of
it is what it is.
That said, it is
certainly possible and eminently
doable to live a reasonably normal life with PN. To maximize your chances, I think it's important to
- Learn as much as you can about your health conditions
- Keep a positive attitude & sense of humor—even about this
- Avoid triggers—foods/activities/etc. that exacerbate your symptoms or cause flares
- Take general care of yourself (which it sounds like you're doing)
- Maybe take a few supplements
The items I've mentioned are those that have helped me cope with & control this thing, and (despite a few other health issues I'm dealing with) live as good/normal a life as I can.
There's a lot to be learned on this site, and a lot of experience & wisdom available for the asking (and very often asking is not required
)
Doc