Thread: MG help needed
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Old 03-08-2014, 10:07 PM
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cait24 cait24 is offline
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Join Date: Sep 2012
Location: Newtown, PA
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cait24 cait24 is offline
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
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I have double seronegative MG confirmed by single fiber emg. I also have symptoms not typical of MG, that started before diagnosis and all the meds. These include severe tinnitus, diarrhea, muscle cramping and fasciliation, lots of pain like being stabbed with dozens of knives all at once, and limbs going numb, and several different types of rashes. Most of my doctors think these symptoms are an autonomic component of an autoimmune disease since they wax and wane with my MG. They improve with prednisone and IVIG just like my MG. Don't be afraid to try another neuro. It took me dozens of specialist and 3 neuros to get a diagnosis and proper treatment.

good luck
kathie
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