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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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I got very sick with the first round of infusion. The horrible headache, and dizzininess and nausea & diarhea and anemia. It was so bad, I did not want to try it again. The first time I used gammagard. It took a full month to feel normal again.
Several months later, my breathing became really bad. So we tried IVIG again but we used a different product, gammunex, and they did it at a much slower rate. It was like day and night the difference. No side effects and my MG symptoms improved a lot.
You should call your neuro before your next dose. There is an IVIG complication called aseptic mennigitis that gives a terrible headache.
I think the first IVIG is a terrible shock to the system and is worse for everyone. But talk to your neuro, maybe they can slow the rate or next time use a different product.
Hope you feel better
kathie
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