Hi Tony, i am sorry to read your suffering so much, i know you have been trying very hard for a long time to find relief, i only wish i could help you in some way.
I do also agree that know one should be judgmental on the extent of some one else's pain, a forum like this is suppose to be supportive, thats the whole idea i thought.
I will keep my fingers crossed in hope of some relief coming your way soon.
take care mate.
Brian