View Single Post
Old 03-09-2014, 09:16 PM
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
Default

I suffered pretty bad aseptic meningitis the first loading dose of IVIG in the hospital .. I got toradol through the IV for the headache (which was Awesome- non narcotic- relieved the pain great).. My temp was up to almost 103, walking hurt my spine all the way up to my head... they had planned a lumbar puncture for diagnostic purposes of what was wrong with me in the first place, and it showed a lot of WBC's consistent with meningitis .. fun

Anyhow.. the KEY to all my side effects is rate-- They ran me at 200 when I was first hospitalized when I crashed - this caused the worst aseptic meningitis.. Then, I never went over 70 for months, as it would cause chest pain and instant spike in my temp and neck and headache... finally we switched to gammunex (thought to be a "cleaner" IVIG by many).. and slowly we were able to creep up to 100 max now, and I now don't get meningitis anymore.. just feel a little run down... But stronger from the IVIG at the same time

and as others said - lots of water.. good luck! (Oh, i also got strange skin rashes with the rate high - on my palms of my hands - teeny tiny blisters.. again, never get them when My rate is controlled. GOod luck!
bny806 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (03-10-2014), cait24 (03-10-2014)