Quote:
Originally Posted by Lil Pain Pixie
I have lived with RSDS in my R leg since 1998. Yes, I have some of the worst pain during my Menstrual Cycle, not part of the cycle, but because of the RSDS. The pain is located where it normally is, but during the cycle it is much more intense, to the point that I cry out loud for a week or longer, hard to eat or sleep. The pain starts days before and lasts during the cycle.
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O-M-G YES! 
I could not agree with you more! Hands down the worst of my symptoms are expereienced during my cycle. I don't even need those parts anymore, so it's like some CRUEL monthly joke.
Quote:
Originally Posted by Lil Pain Pixie
Literally I have seen over 40 doctors about my RSDS, including the Mayo Clinic, and the one thing I can pass on to you is that you will find that you know more about RSDS than the doctors will
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Right on Pixie, no one knows your body or this disease the way you do. And even the disease in some ways is experienced differently for each of us, but all with common threads.
eevo - I have not had an SCS so I am affraid I cannot offer anything there. In fact, I fear that is the next decision I will be making relatively soon. <sigh> So sorry that you are struggling right now hon. Hang in there and if you are uncomfortable and continue to have this rash/bumps keep bugging the docs until you get a resolutoin. Perhaps go see your PCP. Best of luck with this!
