Quote:
Originally Posted by AnnieB3
Hi, Dyankee. Do your doctors think you have MG?
It's possible that you have "foot drop," where it's harder to pick up your feet. Have you had your vitamin B12 tested?
It sounds to me like you have muscle weakness, especially if you can't catch yourself during a fall. Untreated MG can be dangerous if you become too weak. Do you have shortness of breath? Double vision? Droopy eyelids?
By "damaged," can you clarify what you mean by that? When a person falls, they can get bumps and bruises, etc. but those heal up.
An eye doctor can assess your vision, in case that's a problem.
You know, experts say that looking down is the worst thing you can do because it puts the focus on falling and not on standing! 
Yes, I've had bad falls. They are usually due to not being able to pick up my feet well enough. Though I recover fairly well afterwards. It's not fun to fall!
I hope you'll get all of this figured out. How long have you had this problem?
Annie |
Hello, Annie, and Thank You: I've had the exhaustion for quite some time now, and it always worsens in the winter, though this winter has been worst of all. The first fall I had was about three years ago; luckily I landed in the grass from the top step of my porch but I was clueless about how I fell. Second was Christmas week a year ago; fell whilst I was out walking the dog (in bitter cold, I might add) and did what-all to both my knees. I was finally recovering from that when I fell again in April coming down my living room stairs. I've had bad bouts with breathing problems that come on like an express train, especially when working in the garden in the summer. I know better than to push the envelope now. Just recently I started having trouble keeping my eyes open, and, darn it all, nearly failed the eye exam at the registry 'cause I was seeing double. That comes and goes. It's the exhaustion that really troubles me the most. I have to plan EVERYTHING now...even a trip to the grocery store. Can't stack two things on the same day. I shoveled the driveway for a measly hour a couple of weeks ago and spent three days in bed. And when I get that tired, I get sick; pick up the first thing that comes down the road, and then have to get into the doc for pneumonia. Oh, and the choking. The worst bout I had actually started when I was sleeping, and for a few minutes I thought I was going to strangle to death on my own spit. I broke down and cried at my new primary's office this morning; I've had to give up everything that means anything to me; my violin, my friends, long walks with the dog. BTW, my primary was clueless; didn't have anything to offer 'cause my antibody tests came back negative. Lastly, I've learned that the thymus irradiation I had as an infant might be contributing to this, but nobody in my locale seems to know anything about it.
Best,
Laurie