Hi,
I am sorry to hear about having this breathing problem. I as a child was told I had a heart murmur but would grow out of it, never did, but I am not one that needs meds prior to dental procedures or anything.

I think you are doing the best thing by seeing a heart doctor and finding a neurologist too.

I wish I knew what to tell you. My mom had a heart sonagram/scan whatever they call it, where they put gel on you and roll this device around and watch a screen, it can show a lot. Maybe they can do that first.

Do you smoke? I do, and get out of breathe sometimes from that when doing to much. Maybe it's asthma? I am just thinking of things that could cause this.

How long do you have to wait for your appointment?

We are all here for you. I would be nervous too, but hang in there until you know what is going on. I know easier said then done.

Lots of Hugs, Nikko

I agree, it it gets bad, get to the ER.