Quote:
Originally Posted by cait24
Thanks, I am going to ask the neuro for a script for a rollator, I see her in 2 weeks. I upped my mestinon to 120 x 4 and 180 at night. That and 2 days in the recliner and my legs are feeling stronger. I hope this is just a flare. Everytime my legs get so weak without a cause, I am afraid that it is permanent.
They only did 3 days of IVIG, instead of 5 this time. I am new to IVIG and it is only my third time. What is typical for a maintenance schedule? I think I waited too long for IVIG this time.
thanks
kathie
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I don't know the answer to that because I have never gotten past the initial loading dose. But most people get a single maintenance dose and the timing depends on how they are doing. Each person's treatment is totally individual, so you kinda have to see what works. From what I have read, you just have to kind of play it by ear until you figure out what works for you.
If you think you waited too long this time, then you would probably need to shorten the interval next time.