Quote:
Originally Posted by ACC_gal
I have this too but my nuero calls it "spuedotumor cerebri" on a HIG dose of prednisone for swellen optic disks, repeat LPs and diamox.. the diamox only helps a little but the LP does help ALOT, which is why my told me I should have a shunt placed and reffered me to a nuerosurgeon. Right now I am not healthy enough for ANY surgery so it's LPs and prednisone for me. this stuff is a real BUMMER. Headaches and whooshing noises wake me up all the time and I am so dizzy first thing when I wake up I have fallen down my stairs.
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I'm sorry you are I suffering, and not able to get shunted. (Yes, this is also called pseudotumor cerebri) I really thought this would be the answer, and I was feeling pretty good for a few days, but two days ago that kind of all flip flopped. I was able to tolerate it the first day. I called my neurosurgeon's office yesterday and they told me it's somewhat normal to feel headachy and nauseated. I really feel quite a bit worse today and my head pain has me near tears.
I hate to call my doctor's office again, but I'm not sure what else to do!