I have never posted anything before so if I do something wrong just laugh- I know I will! I have had RSD/CRPS for 2 1/2 years and so far have it in both of my legs. Sometime I will tell you about the story of how it came to be in both legs, it's strange and is kinda funny, but not today. I try hard to stay positive and desire to go back to work everyday! I can share funny moments such as the following;
We were at the beach and I wanted to walk into the water. Would you know that it took me 15 minutes to reach the water with my Husband holding tight to my arm. I was so amazed and baffled with the unsteadiness of my (one leg at the time) and how my feet shifted with every movement. I remember thinking, "Wow.. sand can be really hard to walk on"! Once we got to about waist high in the water I noticed the beautiful blue-green hue as every wave attempted to reach up as if to touch my face with the smell of salt water. While we were in the water my Husband thought he saw a Sting Ray and I immediately without thinking I said, "I don't need a sting ray", and turned and tried to walk back to the beach on my own. Twenty seconds later I found myself rolling in the waves until I washed up on the beach like a whale and yelled, "Where is my remote control I have fallen and can't get up button"! I laughed for at least 5-10 wonderful minutes and said to myself "make every moment count".

Having RSD/CRPS stinks, there is no other way around it! I am just happy to be able to talk in a way with others that share the same challenges. I am constantly revisiting what is realistic, things that I can or can not do. I continue to have dreams about what I want to accomplish and each day strive to not let some disease define who I am. I feel that to often if we concentrate on just our pain that after a while we loose who we are. I know that I have days that are very painful and I am tired often but I know that by reaching out to you, I am not alone. Thank you for listening or should I say reading this post!