Originally Posted by applewine

I just saw the neurologist yesterday. I went to the lab to get some blood tests today and I'll get an EMG next week.

These symptoms are always the worst the first couple months after an upper respiratory infection. Right now my wrist is even making stabbing or shooting pain when I press on the table. I remember it doing that last time, but eventually these painful symptoms went away and I was left with the water sensations in the feet.

This is giving me extreme anxiety because I cannot see a way out of this. Even if they do find the cause, which they don't seem to be very good at with neuropathies, I see very few conditions where they have a cure for them anyway.

This has been going on for 3 years and I'm gettine worn out. Before that I had another mysterious condition for a year or so and figured out all my strange symptoms were being caused by a muscle over-training problem called "trigger-points" I really lucked out on that one. I have trigger-points in my upper back and neck and they caused my balance, vision and hearing problems and electric shocks in the head.

I still went through hell because no doctors of any type ( I saw dozens) could tell me what was wrong. They didn't know about trigger-points at all! Maybe if I had been diagnosed early and correctly I never would have gone on to see a crazy lyme disease doctor to mess me up.

The problem is I wanted to "make-sure" I didn't have lyme disease because everybody was telling me about it and saying I should go to this doctor or that and so I figured what the heck and gave it a try. Now I have some weird neurological condition I feel the same way about as the other condition, hopeless.

This time I really think that I won't be able to figure it out or they won't be able to cure it. The best thing I can do is try to live one day at a time, but I so wish I didn't have to go through this.

On the positive side if this is the worst it ever gets I can certainly live with it and do many things. It just keeps healing and coming back.

I've even thought of going back to the crazy doctor just to see what he says, but I'm sure he will tell me that it is these infections that he said I had.

He told me that if I don't take his treatment that I would die, well the problem is also he has no proof and also he hasn't cured anyone either for these "chronic lyme" disease conditions.

He gave me four antibiotics and some supplements. lumbrokinase (a blood thinner), "Garlix" ( a garlic supplement of some sort) and a pro-biotic.

He also gave me some kind of tincture for the first weeks before the antibiotics saying I would have a "herx" from it or something but I felt nothing. I should have stopped right there. I think that was supposed to be a test or something.

I can't believe how foolish I was, but after suffering from a strange condition for a year (actually trigger points caused) and tons of healthcare people talking about "lyme disease" I somehow thought better to be safe and just give it a try, which I did for 5 months. I want my life back.

My neurologist said that the antibiotics could cause c. dif infection but didn't think they would do this anyway by a side effect or my immune system.

If would be awesome if it was just something simple like b12 which could be fixed. I technically read some people have a b12 problem where their levels are high, but they don't absorb it. That must be genetic or something, I don't want a genetic problem, but technically if they can do a work-around fix for it that would be better than nothing.