Thread: PN Unberable
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Old 03-13-2014, 11:52 AM
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
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10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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There is really nothing to do for the numbness. Mine is constant and involves about half of my body most of the time, my legs to the hips, arms to the elbows. I am used to it, or at least resigned. It is distracting, though.
Burning pain has moved up to thighs and hips for me, hard to sit still, going to the hair dresser or dentist is very difficult. I also get shooting pains and muscle aches in my arms and legs which would be debilitating but my pain is managed. I am on time release morphine, MS Contin, 30 mg x 3, as well as 1800 mg. of Gabapentin. With this combination I am able to function pretty well, keep house, drive short distances, shop a little, go for walks. I also have 7.5 mg of Percocet for breakthrough pain, averaging 1 per day. It isn't enough but it is what my doctor tolerates.

It can be very difficult to find a doctor willing to actually address the pain adequately, and you have to be a very cooperative patient. If they suggest other measures like physical therapy you must be compliant. Valium worked much better for my muscle spasms than Baclofen, but I have to give it a fair trial. Neuropathic pain has been called the most difficult pain to treat as well as the most painful, yet there are still doctors who dismiss it. My own neurologist, who was upset at my test results still said I shouldn't be in this much pain. I hope that you are able to find some relief. How long have you been dealing with this, and do you know your cause?
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