To Andy Burnham Shadow Secretary of State for Health. If you live in the UK please take what you want from this and e-mail your MP asking them to call for Norman Lamb's sacking and action to be taken as he promised.

13/3/2014
Dear Sir
I have been informed by Andrew Pakes that he has sent you 2 documents and a covering letter.
I was first told that Mr Pakes would be asked to contact me over the Worlds Most Painful Incurable condition in May 2011. On further 5 or 6 occasions before this year I was again told he would be asked to contact me including by Councillors Steve Coventry and Hannah O’Neill. Finally he announced he was holding a meeting on 25th Jan this year, despite the fact that I had only left my house on 8 occasions in 2013 I decided to attend only to be told that he was too ill to come when I arrived. I spent half an hour with his assistant explaining the 2 documents and saying that along with another letter I could supply if requested which proved the previous Health Minister had lied to Parliament on 2 Nov 2010 they could be used as a potent weapon against the government. His assistant stated he would pass them on and Mr Pakes would be in touch. On the 4th Feb I contacted Steve Coventry to say he had still not been in touch and he replied with a copy of his e-mail to Andrew Pakes asking him to contact me ASAP.
On the 18th I sent the following Hi Steve
2 weeks and nothing, You really need to talk to your chairman do you want someone like Pakes standing. First told he would contact me early 2011, 5 more times he has failed to respond. I really don’t want to go public but if that's the only way to make sure he doesn’t get elected I will.
Kevin
Surprise Surprise the very next day he sent an e-mail saying he had forwarded the stuff to you. You will understand why I cannot trust that he has done so and have attached them here. Even if he has I doubt he will have detailed how they and the other letter if you request it can in my opinion best be used to embarrass and shame the government and force Mr Lamb’s sacking. Benefit sufferers and your party.
Before I go any further I would ask that you spare 5 mins to watch the following video so you have some idea of what this does to sufferers but I need to give you 2 warnings first, you will find some of the images disturbing and secondly although in the majority of cases this starts after a fracture or surgery, a significant number occur from something as trivial as a twisted ankle or sprained wrist so you your family and friends are all at risk because studies have shown it occurs after 5% of all injuries.
http://s834.photobucket.com/user/Kev...eam-1.mp4.html
I know it sounds old-fashioned nowadays but I believe in Honour, Duty and a Man’s Word is his Bond. It should be an Honour to be a Minister in this country’s Government. If appointed as such there is a duty to carry out that position to the best of your ability for the benefit of the population and if a Health Minister then that duty is multiplied a thousand fold as you are responsible for the ill and weak. If you give your word especially in that position only severely crippling injury or death should prevent you from carrying out your promise. Not only did Mr Lamb give his word as the last sentence in the debate but he told me afterwards that if I sent in a list of suggestions he would go through it with Iain Stewart to see what could be done to help sufferers. That letter was forwarded to him by Iain mid-august and the fact that 7 months later he has not even had the decency to acknowledge its receipt makes it blatantly obvious he had no intention of keeping his words when he uttered them and is not fit to be a minister in any way shape or form.
If you were to adapt step 4 in my Letter to Mr Lamb and ambush David Cameron demanding to know why Mr Lamb failed to keep his word, pointing out that he was made aware that 25% of sufferers commit suicide He must share responsibility for an unknown number of suicides and while he might not care, that I have to live the rest of my life knowing that some people might still be alive if I hadn’t trusted him and waited so long for him to act. That because Mr Cameron gave him the job he must also share responsibility for those deaths. Why with this country in such a financial state having been given a relatively inexpensive way of reducing expenditure by a billion or more a year he has done nothing. Why knowing there maybe as any as 460,000 undiagnosed sufferers out there he has not lifted a finger to help them and demand his sacking.
I would ask that as per that step you would fund some sufferers being there in any case I would want to be there, they would need at least two week’s notice to be able to attend, for you Mr Miliband and all the other Shadow Health Ministers to meet them afterwards and to then do the press conference to enlist the media’s help in finding the undiagnosed. I have no doubt you would gain votes from a lot of those sufferers and their families who have gone un/misdiagnosed for many years, for some it will have been 20 years but there is away for you and Mr Miliband to touch millions of voters and show that you want to be the government which serves the people and is not their masters.
It would take men of honour and courage to do it and I believe would be a world first. At the Press conference you would produce and sign witnessed by 2 sufferers a legally enforceable contract drawn up by one of your barristers. It would state that within 30 days of taking office you would ensure that an e-mail is sent to every medical facility in the country about RSD/CRPS and in that time period you would meet with sufferers and Specialists to discuss the other steps in my letter. Within 90 days of taking office you will have instituted training courses for the next intake at all medicals schools and training sessions in all trusts for existing medical professions. Within 120 days you will have started on all other steps agreed to in the meeting. Should you fail to do this then you will resign from your positions and never hold high office again.
Sir what ever you decide please help my fellow sufferers; please give them hope a reason to carry on fighting.