Originally Posted by JoanB

Januarybabe, I sent you a PM that I hope answers some of your questions. I did want to address the issue of diagnosis here because there seems to be a question about that: an MRI usually is not conclusive evidence. You are doing the right thing by getting the lumbar puncture. Good luck and let us know how

Thank you for PM. I have been searching for years for some kind of Dx. I hope all goes well with spinal tap. I previously had steroid injections in back. The ladies at neurological MD said this would be similar.b