Quote:
Originally Posted by TOSurviver
For some background info:
I'm a healthy, active 19 year old, and I've had TOS for over 4 years now, been diagnosed for about 3, and have not responded to medicines or physiotherapy. About 2 1/2 years ago I had a left rib resection and scalenectomy to try to fix my worse arm (left) and initially the pain went right away, but after about 6 months the pain started returning slowly at first; and now I have a considerable amount of pain in both arms daily.
But here is what I really want to know:
1. My surgeon told me that my operation was really the end of the line in terms of treatments for me...is this true? Do I really just have to live with a chronic pain for the rest of my life? Honestly all I feel like doing is getting my nerve cut out...that might seem drastic to some but those who have had chronic nerve pain surely you understand?
2. I have never really been much of a runner, but for the past 2 year I have noticed that if I do try to go for a run, literally about 100m (max) into the run my arms will start to feel really weird and heavy and slightly tingly, and my hands will go really really white/yellow. then I have to stop because it hurts heaps and the red colour slowly comes back into my hands as blotchiness..
Has anyone else noticed anything like this? Is this something that I should be worried about or at least see a doctor and get a referral to a neurologist about it?
Any advice/similar stories/ comments about anything would be MUCH appreciated!! I just want to hear from someone in a similar situation! I have never met anyone with TOS so I'd love to be able to talk to people who actually know about it and understand a bit more...
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Thanks for sharing your story, and I'm sorry you are going through this. I've been dealing with TOS for 21yrs, so I know about what you are going through. Just had my third surgery 3 months ago. No, u don't have to live with that pain, you are too young. U have so much life to live. I've gone through the same thoughts and others, due to all the pain with TOS. But thank GOD I didn't follow through with those thoughts. I hope and pray u will not allow all the pain and other symptoms get you down. There are plenty of doctors that can help you or at least give you some more advice. Trust me, in my years dealing with this, I've been told everything. I've gone to NUMEROUS of doctors.
This is a great site, and most of us have been through what u are going through. So u are not alone. Keep asking questions, and someone on here should be able to help you with a doctor in your area. Keep fighting, and don't give up.
God bless