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Old 03-15-2014, 05:21 PM
20YrsTOS 20YrsTOS is offline
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Join Date: Jul 2013
Posts: 80
10 yr Member
20YrsTOS 20YrsTOS is offline
Junior Member
 
Join Date: Jul 2013
Posts: 80
10 yr Member
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Quote:
Originally Posted by enixus View Post
Hi,

my issue started back in July 2013 when I started experiencing pain and burning in my right hand and wrist while using the computer (my job). I started physio but the pain got worse and started spreading right up my arm. Tingling, burning, loss of sensation on my pinky and ring finger. I went through several diagnoses : De quervain, carpal tunnel, cubital tunnel, Herniatic disc pressing on nerves. I had done nerve conduction studies for carpal and cubital tunnel , MRI for my neck , x-ray for my neck, ultra-sound for my wrist and elbow and everything came back normal. The last specialist I saw suggested I could have TOS. I can't lift my arm above my head without losing the sensation of hand/arm, burning and weakness of my arm and the same happens if I extend my arm out. My neck feels stiff, I sometimes get headaches at the back of my skull. Using the computer, watching tv and driving all give me pain and stiffness in my arm , as well as tingling and numbness.
I had an x-ray done to check for an extra rib and came back normal. I also had a duplex ultrasound to check the flow of my veins and it seemed normal too. I had a slight reduction of the flow with my arm lifted but still within the normal range. The upper limb specialist suggested I see a cardio-vascular specialist. I am lucky that WorkCover is paying for all my visits but I am not sure I am closer to a diagnoses than I was last year.
Could this be TOS even though both x-ray and ultrasound are normal ?
Welcome to the site, and I'm sorry you are going through all of this. Unfortunately, all of your symptoms are related to TOS. I've dealt with TOS for 21yrs, and all the test u stated above I had. I've had those same test at least 4 or more times, and they all came back normal. Had a third surgery, (scalenectomy and rib resection) three months ago.

Try to find a vascular surgeon in your area that knows about TOS. A lot of doctors do not know about TOS, so it's important to find someone who specializes in TOS. Keep searching and don't give up. Keep us updated on your situation.

God bless
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