They checked out all the GI stuff. They did an upper and lower endoscopy with tissue samples for celiac. They were negative. They did a small bowel follow through, no Crohns but a 15 minute transit time, They did the blood test for celiac - negative. i had the GI symptoms way before they suspected MG or gave MG meds. They tried taking me off meds no relief of GI. The GI gets worse when the MG is worse. When I first started mestinon, the GI symptoms went away completely for 3 months. As my MG got worse, they started to return. When they put me on cellcept, again the GI went away for 2 month. Then a month ago my MG took another turn downward and the GI symptoms are coming back. They are accompanied by intermittent low grade fever and sweats. They did all the routine stool culture- all negative. The gastro thinks it is autoimmune related.

The rashes I have gotten from childhood on and off on exposure to sun. I get the rash on checks and nose and a web like rash on my legs and hands and arms. Now the rash does not go away. I have it all the time. It is less inflamed in the morning and gets worse as the day goes on. I had a bunch of antibody tests all negative.

I had a partial thyroidectomy 30 years ago. They started me on synthroid last year when my TSH went to 4.5.

I had an MRI of the brain and Evoc potential to rule out MS. I had spinal MRI and emg to rule out disc compression - negative.

I have routine bleed work every 3 months. I became anemic last year, that subsided and I am anemic again now. Moderate spherocytes were in my blood last year. MY CK have been normal. Albumin always low, electrolytes are ok.

That is about the extent of my testing.

thanks
kathie