Neirochic "A lot of people with CRPS are doing a huge amount to help themselves every day."
and that's it they are unwilling to help outsiders.
I posted on here about National Awareness month in 11 or 12 and 80% of Americans had never heard of it let alone knew what month.
Had a look at Rare Disease and will contact them but 1 day a year is not going to make a difference.