Try to find a vascular surgeon in your area that knows about TOS. A lot of doctors do not know about TOS, so it's important to find someone who specializes in TOS. Keep searching and don't give up. Keep us updated on your situation.

Hopefully the vascular surgeon I am seeing next week can give me a more definite answer. My normal doctor doesn't believe I have TOS despite my symptoms and wants me to do a brain MRI.
Today I am in pain and I wish I could just chop my arm and shoulder off !!!!