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Originally Posted by JeanKNC
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Wonder who you consulted with at Hopkins?
How's are you handling pain? I am 3 yrs since dx. Taking GABA and OTC.
Sometimes Flexeril at nite.
Considering surgery. Dr F Dallas. Had phone consult last yr. leg numbness n
Weakness comes n goes. But who needs that.
Good luck with low to NO PAIN.
JeanKNC
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First, I had a consultation with Dr. Donlin Long, retired Johns Hopkins Neurosugeon who preformed tarlov cyst surgery prior to retirement. I decided to try the aspiration fibrin glue injection. I had excellent relief for 8 mos. Just had a second procedure Feb 6. Dr. Sudhir Kathuria at JH is an interventional neuroradiologist who preforms this.