Hi Susanne

I cannot imagine the horror of knowing your sons will most likely inherit this. I believe that in their time there will be better medication to assist people with chronic pain. Only a few days ago I saw an interview with a Scientist who is working on a very promising breakthrough treatment. He said this new drug should be available in a few years. That may be a long wait for us, but for your sons, hopefully it will make their lives easier.

I don't believe that this new drug is our Holy Grail necessarily, but if not this one, perhaps the next.

Thank you. Finding these forums is a great help. The support is amazing.