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Old 03-17-2014, 10:43 AM
MikeK MikeK is offline
Junior Member
 
Join Date: Mar 2014
Posts: 72
10 yr Member
MikeK MikeK is offline
Junior Member
 
Join Date: Mar 2014
Posts: 72
10 yr Member
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I try to remain positive, I have "good days" or "other days". I have tried to remove "bad days" from my vocabulary.

My PN appeared after they woke me up from an induced coma for treatment for legioneers disease 3+ years ago. I started complaining the 1st day they moved me from ICU to a regular room. The Dr's were as confused as I was, they were like Mike you haven't been on your feet for almost 3 weeks we don't know why you are in pain.

At first they thought it was a side effect and would go away in 6 months. After 18 months I sort of realized it wasn't.

I now take 1,200mg of Gralise once a day, is it better than Gabapentin I still don't know. The biggest benefit I see is I don't have that spike in pain during the afternoon when it was time for the 3PM pill. I also take Fish oil and vitamin's B & D.

What I know is:
Shoes & socks are evil, Birkentock clogs or sandals are my friends.
Sometimes blankets hurt.
I try to go the the gym at least 3X a week (never did this before I was sick). I do some light weights and low impact cardio (bike & eliptical). I've started doing a water aerobics class. Even "bad days" I try to go. There are many days I am borderline miserable when I get there and I feel some relief when I am done, just as long as I don't have to put my tennis shoes back on after I shower

I am an almost 60 male, overweight but healthy and will continue to try to be positive and moving foward.

Good Luck & I hope you find something that provides you relief to get through the "other days".
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