I believe Susanne's two sons have inherited CMT. It would be the same type that she has which is CMT2 but the subtype in her case is not known as I understand it. However, no one not even a doctor, can predict how they will end up. They might have awful pain or not. No one knows. CMT symptoms vary greatly even within the same family.

Also, I believe I have read that Susanne also has arthritis and that can be contributing to some of the pain, stiffness, etc. And also overdoing exercise and the like. That can exacerbate CMT symptoms. There is a fine line as far as overexertion. No pain, no gain is not for a CMTer.

Numb legs, feet, hands, etc. can certainly be a part of CMT. There is pain medication out there, many types, that do help a lot of people who have a type of CMT. There are over 70 types of CMT identified so far.