B12 is "okay?" Anything at 500 and below is suspect.

Limpy is spot on about that. LEMS on a repetitive nerve stimulation doesn't always show that slight strengthening, followed by weakening. For some people, they have to exercise before the test, so that they can see the decrement better.

If, scratch that, WHEN she goes to a pulmonologist, make sure that they do MIP and MEP. That will differentiate between asthma and a neuromuscular cause.

Did she see a neuro-ophthalmologist?

I totally get how annoying it is to see a lot of specialists. It's like a health care scavenger hunt! And the only "prize" you get after all of that is a disease (or two or three).

HOWEVER, MG can be deadly. Or at least put you in the hospital, where you can get a bunch of germs and die from that. If you guys have AIs that run in families—and they do, contrary to what some docs say—then it's quite likely it's MG.

Did they send the ABs to Mayo? They invented the damn tests and have a better track record at accurate results.

Does her endo run morning, fasting labs? They are the most useful. Does she run electrolytes, too?

I hope she gets answer soon. Tell her to hang in there, and make sure to take time for a LOT of sleep and naps. It's the only way to manage MG without drugs, if she has it.


Annie