Good grief, Kathie, how is anyone a burden?!!

So what you have is not a "rash" per se, but a vascular sign. I always like the derm sites the best when putting skin symptoms together.

http://dermnetnz.org/vascular/livedo-reticularis.html

Do you take B12? Some people, especially those with GI problems, cannot absorb B12 through the intestines. Instead, taking sublingual methylcobalamin—which absorbs into the bloodstream right away like nitroglycerin—is the best alternative. And as Rose (former forum member) used to say, what is in a blood test is not necessarily indicative of what is getting to your tissues!

If you want to try it, you can get it at Amazon or iherb. Jarrow brand is what I use daily. And we need it to make acetylcholine anyway!

I hate walking very far, because the recovery time is so much longer. That's a great way to put it—like Frankenstein! I literally can't move after an outing like that.

Kathie, living with MG is something I've never completely adjusted to. It's so relentless and such a cruel reminder of how powerless I am over it. And what makes it, and other health problems, so beyond difficult is when doctors begin to doubt the disease. Or you. I frankly think it should be illegal to bring any psycho mumbo jumbo into the doctor-patient relationship.

It's so obvious that you have MG. Sure, there might be something else going on, but that doesn't mean the original diagnosis was wrong.

Do you know what your vitamin D level is? Recent studies show that a deficiency of it might CAUSE AIs! I have no idea how long I was deficient before it was diagnosed.

I wish I could've kept working. I think giving it up is one of the hardest things I've ever done. I still wish I could work, 16 years later! I hope you don't have to give it up. Talk to your neuro about a motorized scooter. They have new ones now that are lighter and easier to tote around.

The diarrhea could be caused by the Cellcept. That's pretty common. And they do cause "achiness" and other symptoms like that due to suppressing the immune system. So some of your symptoms could be from the drug. Also, night sweats could be a symptom of an occult infection. Geez, there's so much that could go wrong on these drugs!!!

I'm sure you and your docs can figure all of this out and put all of the clues together in a way that makes sense. Maybe you could put symptoms into categories before the JH appt. Put the MG ones in one list, the possible Cellcept side effects in another, etc.

I wish magic wands really worked!!!

Annie