I wish more doctors understod this condition.. My nuerologist and nuero opthamologist both understand it well. But it gets tiring when you have a headache nonstop,neck pain,vomiting and dizzyness so severe you visit the ER and they basically tell you there is nothing they can do. NOTHING? really. For me Having a spinal tap and a bunch of fluid drained seems to make a big improvement.. but it only lasts a few days before I need it again. We have tried Diamox but the side effects were too much. Then we tried prednisone.. I gained A TON of weight.. which made things worse. Now we are looking at a shunt. So tired of explaining my headaches to the ER people when they get that bad.. even phnetanyl wont touch these!