I'm quite happy to put something together if I can have some ideas of the general ideas and topics folk think are important.

I'm good at words, it was my job for years lol, and I do think it's very important how that initial communication comes across to someone new - first impressions count in words almost more than in person. Making something too aggressive, or technical, negative, or just boring can instantly put the reader off, and they might only read a few sentences before dismissing it. And all your hard work is for nothing. Also, the actual writing counts for a lot - it's a bit like a job interview - if your spelling is poor, punctuation non-existent and grammar difficult to unravel, you will lose someone quickly - particularly anyone who deals with a lot of such communications like a press officer or newspaper editor. They like you to make their job easier, and if it all has to be rewritten to make it acceptable to their own standards, they just won't bother.

If you post your own thoughts on what you would like to say here, I'll amalgamate it all and write something anyone can send to their politician, newspaper, TV channel, local fundraiser etc. Anything that might raise awareness, educate or raise money for CRPS is worth doing.

I'd really like a sticky thread for this kind of thing too. Somewhere we could post the important stuff for people to print off - hospital protocol, fact sheets for doctors, dentists and physios, and standard letters to send to your newspaper to prompt their interest in an article. That all-important explanation of CRPS and how it affects you, to give to your family, friends and colleagues at work... But all written clearly and set out well, so that folk have the best chance of being heard and understood.

I'm not saying only I can do that lol as there are plenty of folk on here that write really well! Just that I know how important the written word is, and how easy it is to get it wrong. I'm lucky that I can write fairly well, and I appreciate that it's something a fair number struggle with through no fault of their own.

Oh dear, hope this hasn't sounded too preachy. I get a bit passionate about writing! Anyway, my point is, yes I'm happy to create something if it's useful. Just give me some ideas and I'll get onto it with pleasure

Bram.