Member
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
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Member
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
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It is disgraceful that your pain was not taken more seriously. I believe that the way you approached your doctor was very commendable and his response indicates that you need a new doctor. Neuropathic pain is very hard to treat, and at its worst, extremely debilitating. Under-treated pain has been known to lead to depression and even suicide, and doctors should feel an obligation to relieve it. Visiting a neurologist, while necessary, will probably not help, as they seldom prescribe pain medication.
I am currently on MS Contin, 30 mg. x 3, Gabapentin 600 mg. x 3, Baclofen 10 mg x3, and oxycodone, 7.5/325, as needed for breakthrough pain, averaging one per day. On this regime I am able to run a household of 5-7 persons, go for walks (I use two hiking poles and my husband accompanies me in case I fall), and drive in a 5 mile radius. Without it I would be depressed, my thoughts dominated by the pain, and unable to leave my sofa and blankets. Even with it I am subject to an all over sunburned feeling, stiffness, numbness, and the feeling of furry creatures running all over my legs and hips. The horrible shooting pains in my legs are calmed by the medication.
I hope that you are able to find a doctor to work with you on finding the right combination of medicines. It is unconscionable to withhold real pain medicine from someone suffering with this disease.
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