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Old 03-18-2014, 06:38 PM
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jana jana is offline
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Join Date: Apr 2009
Location: Tenn
Posts: 554
15 yr Member
jana jana is offline
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jana's Avatar
 
Join Date: Apr 2009
Location: Tenn
Posts: 554
15 yr Member
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Well..........................

We went back to the neuro today. I was loaded for bear , as in.............."Let's do these blood tests and what do you think about this journal article I found?"

Didn't even get to open my mouth. Neuro came in and said CT scan DID appear to show a thymoma. We need to get my sister to a surgeon! We thought the CT was negative, although a superior mediastinal mass was found -- hints were that it might be thyroid related (endo says "NO!"). Radiologist apparently didn't know about HIGH striational antibodies which would lead him to conclude mass is a thymoma.

Neuro put my sister on a trial of Mestinon.

We are stunned --- and exhausted.

Many thanks Annie and Limpy -- and everyone else who read or thought about this.

P.S. Annie, her MG panel WAS done at Mayo!! I told her that you said she DOES have a good reason for all the naps she has been taking.
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