Quote:
Originally Posted by enixus
Try to find a vascular surgeon in your area that knows about TOS. A lot of doctors do not know about TOS, so it's important to find someone who specializes in TOS. Keep searching and don't give up. Keep us updated on your situation.
Hopefully the vascular surgeon I am seeing next week can give me a more definite answer. My normal doctor doesn't believe I have TOS despite my symptoms and wants me to do a brain MRI.
Today I am in pain and I wish I could just chop my arm and shoulder off !!!!
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I hope u are able to get an answer. I know the pain is unbearable at times, but don't allow it to get to u. As stated, I just had my third surgery in Dec, and I'm still having some pain and swelling. But I'm not giving up, because I have too much to live for and do. So do u. If I told u how many test I've gone through these 21yrs, u will be shocked. I've had about 3 brain MRIs, and all came back negative. I'm praying the vascular surgeon will give u an answer. Ask a lot of questions. I know it's frustrating, but we all have been in your shoes, this is why we are on this site. Maybe u can get some OTC pain pill to help with your pain.
FYI, I had my second surgery in 2003, and I tried to go back to the doctor who performed the surgery, and he didn't want to see me. Same thing happen after my first surgery. The doctor who performed my second surgery was one of the top doctors that knows about TOS. Well at least I was told that. After that, I was told all kinds of stuff from other doctors, but was still in horrible pain. I had swelling, weakness, involuntary movement, etc. I kept working through it all. Now 11 years later, this doctor told me, if I didn't have this surgery, I would lose my left arm. The other two surgeries was on the right.
So if there's someone who should have cut his arms off, it's me. I thought about that, but it's not going to prove anything. I kept praying and using my Tylenols. So u keep fighting, because I am. Starting physical therapy soon, will keep everyone updated.
God bless