Just got back from the brand new physiatrist.

I like him. He Rx-ed me a new AFO, for the left leg. (I have one on the right).

He told me about the medicine Ampyra, but then told me he wants to give me a cheaper medication that's compounded, that's made out of the active ingredient in Ampyra. (4-Aminopyridine) Mostly because the Ampyra costs $1000 a month, and 4-Aminopyridine only costs $60 a month. I have to call my neuro and tell him about the 4-Aminopyridine, and if he says it's ok for me to do it, the physiatrist said the neuro could Rx it, or that he would.

That exercise bike thingie that I bought earlier this year, and probably mentioned in this thread before...I showed him a picture of that. He said it looked like a good thing. Told me to make sure I'm holding onto something like a desk or put it in a doorway to have something to hold onto while I'm using it. Since it kind of looks like a unicycle more than a bicycle. Way ahead of him on that. I'm installing grab bars into my bedroom for it. I just need someone to carry it downstairs for me, and put it together.

While we were on the subject of compounded medications. I asked him if he'd ever heard of LDN. He had. He's never prescribed it, but he's heard of it. Said that he's been following the research. He's not planning on Rx-ing any tho unless there's more research. He said he might be willing to look around to find someone who would Rx it tho.

I'm going to have him help me get my hand controls for my car.


and as I'm sitting here, I've just realized that their receptionist never asked me for my insurance card when I got there. Hmmm...wonder what's going to happen when they try to bill me? Maybe I can send them a scan of my card in email?

I actually liked this doctor a lot more than the old physiatrist. So, I'm pretty pleased.

I have an appointment with the AFO making people for next week. So, I guess my dream of being able to wear real shoes again someday is out the window again. Now I'll have matching footwear/legwear again tho. My neighbors are going to give me some hairy eyeballs when they see me walking around outside now.

My bedroom remodel is going nicely. My wall is moved. I finally got drywall on the walls yesterday. I'm still waiting for a door tho. They still need to finish the drywall with mud, and sanding it down, and then painting it. I ordered the grab bars I wanted for my wall from Amazon. Got them yesterday. Exactly the same as the fancy ones I bought for my bathroom a couple of years ago. (lot cheaper than going to Lowe's to get them too. yay Amazon Prime!)

My room is pretty huge now. Bigger than I thought it would be actually. I picked out paint for my walls (blue) and I've got plans for hanging some mirrors that I've had since I was a kid, and I'm going to put up pictures of my old dog on the walls.

I actually had two walls moved. The original wall that I wanted to move. And then the contractor is moving my linen cabinet from the wall it was on it the hallway, and he deleted part of the wall that the cabinet was connected to. Which is now going to be where my little exercise area will be. Deleting that wall and moving the linen cabinet to be over next to my desk is actually a great idea. Since it gave me that extra bit of room. It should make my desk look bigger too. I won't have to walk around the linen cabinet now to get into the bathroom. It's now a straight shot into the bathroom.

I can't wait till the linen cabinet is done. Since I've been storing all my clean towels in laundry buckets for the past week. Plus, I really want to see the paint on the walls.

Maybe something good is finally happening here. Seeing as how I've woken up on the wrong side of the multiple sclerosis the past couple of days. (did an oral prednisone taper the past week, and it's made me very exhausted and a bit screwy in the head the past day or two.)