Hi Steph, I am so sorry that you are suffering so much. I don't know if what you have is rsd, but I would go to a neurologist first to see what they think is going on. Then maybe an orthopedic specialist. If you have seen them already, maybe try a different dr and mention rsd to them. I know it's scary when you are in so much pain and don't know what's going on, but maybe these drs can help find out what's going on so that they can help you. I'm here if you need a friend. I hope that helps you to feel less alone. Take care. I will be praying for you.